Day 2 of #HeartMonth. We are the lucky ones. Ellie’s special heart was discovered when I was 5 months pregnant. It wasn’t until she was born that her exact diagnosis came to light, but we knew we were on a totally different path at 20 weeks gestation. #UnbalancedAtrioventricularSeptalDefect is the name of Ellie’s diagnosis, but all you really need to know is that half of her heart didn’t form fully leaving her with just half of a functioning heart. Enter OSF Children’s Hospital of Illinois– a place that I had no idea existed until I was told Ellie would be spending time there having surgeries and procedures that would help the little heart she has to function as best as it can. CHOI is outstanding and staffed with people who amazed me every day. Thanks to them, Ellie is a thriving 5 year old with a bright future ahead. #CHDAware#SingleVentricle
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