I\u2019m excited. I have been for weeks. They told us that this appointment would be the one where we find out if what I\u2019ve suspected since I found out I was pregnant is true; we\u2019re having a girl. The whole 30 minute car ride to the hospital I can\u2019t stop talking. Not really about the appointment, just in general. I\u2019m too excited to sit in comfortable silence with you. You are quiet. You are always quiet, but I see the small tug at the corners of your mouth; you\u2019re excited too.<\/p>\n
They call us back to begin the scan. The room is dark and warm, almost like a cave. It might be cozy if not for all the medical equipment everywhere. I have started to become comfortable with the fact that my dignity is of no consequence here as I adorn the hospital gown and get situated for the scan to begin. The tech performing the scan is sweet. She\u2019s young, maybe younger than we are. She is very friendly and I think immediately that I like her.\u00a0 You take my hand as she squeezes warm goop from a tube and digs the probe into my belly.<\/p>\n
I\u2019m still talking. I love new people, especially people who are about to show me my little kiddo, so I make conversation with the tech as she begins searching for features and charting measurements. She is animated too and I think that she may like me as much as I like her. The conversation ebbs and flows as I try to contain myself so she can do the work she is here to do. She tells us what we are looking at- a hand, a foot, a back- and finally tells us exactly what I have been hoping to hear: we are having a girl. I grin wildly at you, and you smile at me. I say \u201csee I told you so!\u201d and you chuckle and assure me that you never doubted me for a moment.<\/p>\n
We are lost in that moment for a while until I realize how quiet our tech has become. I look at the monitor. By the rhythmic movement on the screen I know we are looking at her heart. We aren\u2019t just looking, though. The tech is scrutinizing. She is measuring and re-measuring. She jabs the probe harder into my gut. It hurts, but I\u2019m more interested in what she is looking for. The smile she had been wearing has completely faded and her brow is furrowed with concern and determination. This goes on for what feels like an eternity- the silence becoming loud, uncomfortable, frightening. I know you feel it too. You just keep watching her. Your hand starts to sweat and I let go because it\u2019s too much to add to everything I am feeling right now.\u00a0 My heart is pounding. I finally ask.<\/p>\n
\u201cWhat\u2019s going on?\u201d<\/p>\n
The tech jumps slightly. Sound has become so foreign in this place that it has startled her. She composes herself and tells me she is just doing a more in depth scan of the heart. She is back to silence. I go back to it too. I don\u2019t know what else to do. It\u2019s you who speaks this time.<\/p>\n
\u201cIs something wrong?\u201d<\/p>\n
She falters. She is thinking carefully about what to say.<\/p>\n
\u201cI\u2019m almost finished and then the doctor will come in to discuss the scan. I\u2019m not really allowed to interpret anything.\u201d<\/p>\n
She looks at me briefly with concern, but then immediately sets back to it. Once she has all her images and measurements, she helps me clean the goop off my belly and tells us that she is going to get the doctor.<\/p>\n
We sit in silence. I\u2019m not excited anymore. I\u2019m terrified. Even though we haven\u2019t been told anything, I can feel the tension from what has just transpired. Adrenaline is pumping as my fight or flight instincts are in full force. I\u2019m talking myself down. I\u2019m telling myself to relax. I look at you. Your leg is bouncing and it\u2019s shaking the table I\u2019m sitting on and it\u2019s making me furious. I have to bite my tongue not to yell at you to stop. I have just enough of my wits about me to recognize the anger is from fear and it\u2019s not fair to be so angry with you. It\u2019s been an eternity. What are they waiting for? Where are they? Don\u2019t they understand how long we have been waiting here?<\/p>\n
You start to pace. You\u2019re tense and frustrated.<\/p>\n
\u201cI\u2019m going to go see what the hell is taking so long.\u201d<\/p>\n
\u201cGo for it. This is unreal. They can\u2019t just leave us here all day.\u201d<\/p>\n
You head for the door but it opens before you can reach it. It\u2019s the doctor. I don\u2019t know who he is. He introduces himself calmly. I\u2019m trying to read him, but he has mastered his poker face from years of practice. His tone is casual as he begins.<\/p>\n
\u201cMr. and Mrs. Crawford, we saw some anomalies on the scan with your baby\u2019s heart. It appears to be much smaller than is typical at this point in gestation. It could just be the way the baby is positioned, but just to be on the safe side, we will have you meet with a pediatric cardiologist next month and do another scan.\u201d<\/p>\n
1 month. We have to wait one month to know if there is something wrong with our little girl\u2019s heart. The month is long and we are exhausted. The drive back to the doctor this time is somber and silent. There is no excitement here. We don\u2019t talk about it or set any expectations. We are preparing for some kind of battle and we cannot arm ourselves with false hopes.<\/p>\n
The scan is much as it was the last time. This tech is not as friendly or as happy as the one before, but I find I don\u2019t care. We are all quiet this time and although the silence is heavy, I can\u2019t imagine having to engage in small talk right now. When she\u2019s done, she tells us the doctor will review and come see us in a moment.<\/p>\n
Dr. Bramlet comes in. He is young and handsome and dressed impeccably. He is confident, bordering on arrogant.<\/p>\n
\u201cMr. and Mrs. Crawford, your daughter\u2019s heart did not form correctly. Based on what I\u2019m seeing, it is likely she has something called tricuspid atresia, but it\u2019s too difficult to tell in utero. When she is born, we will do a scan and determine what exactly is wrong and make a surgical plan based on that. Likely she will need several surgeries, but I can\u2019t really be more specific until we know exactly what we are dealing with.\u201d<\/p>\n
He continues. He is matter of fact. He is neither warm and bubbly nor cold an unfeeling. His approach is clinical and I appreciate that. I need someone to be clinical. I need him to be this way because I cannot think critically right now. He begins talking about different surgical options and they all sound like science fiction.<\/p>\n
He\u2019s still talking, but it\u2019s become hard to hear him over my own thoughts. The more things he says, the more I realize the dreams I had for this little girl and our family is gone. I\u2019m not crying yet. I don\u2019t really know how to mourn this. I can only sit there and listen to this man tell me medical terms I don\u2019t understand and explain procedures I didn\u2019t know existed.<\/p>\n
\u201cIt\u2019s important to remember that kids born with congenital heart defects, even ones as severe as your daughter\u2019s, can live fairly normal lives.\u201d<\/p>\n
Hope. He offered us hope. I cling to it. I mentally start to pull back out all the dreams I had just thrown away and start to smooth them out again. You take my hand. It feels rough and warm and so good right now. You\u2019re here. You\u2019re in this with me. You and I together. We continue to listen, and I squeeze your hand to let you know I\u2019m here with you.<\/p>\n
When it\u2019s all over, we have new appointments, a new hospital, new testing, more scans- our docket is full and our heads are swimming. We drive home, talking a bit more now. It\u2019s the first round of a game we will play countless more times in the future: focus on the hope.<\/p>\n
<\/p>\n
End part 1.<\/p>\n","protected":false},"excerpt":{"rendered":"
I\u2019m excited. I have been for weeks. They told us that this appointment would be the one where we find out if what I\u2019ve suspected since I found out I was pregnant is true; we\u2019re having a girl. The whole 30 minute car ride to the hospital I can\u2019t stop talking. Not really about the […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2],"tags":[],"class_list":["post-1","post","type-post","status-publish","format-standard","hentry","category-blog","post-preview"],"_links":{"self":[{"href":"https:\/\/ellieheartwarrior.com\/index.php?rest_route=\/wp\/v2\/posts\/1","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ellieheartwarrior.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ellieheartwarrior.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ellieheartwarrior.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/ellieheartwarrior.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1"}],"version-history":[{"count":2,"href":"https:\/\/ellieheartwarrior.com\/index.php?rest_route=\/wp\/v2\/posts\/1\/revisions"}],"predecessor-version":[{"id":40,"href":"https:\/\/ellieheartwarrior.com\/index.php?rest_route=\/wp\/v2\/posts\/1\/revisions\/40"}],"wp:attachment":[{"href":"https:\/\/ellieheartwarrior.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ellieheartwarrior.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ellieheartwarrior.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}